November 15, 2012 | Teeny Manolo



Archive for November 15th, 2012


Well, How Did I Get Here?

Thursday, November 15th, 2012
By Glinda

We received the results of my daughter’s Day o’Testing, and the results came back as everyone pretty much not knowing  the cause of my daughter’s multiple speech and behavioral issues.

Which is SO not helpful.

I should start by stating that my daughter was not diagnosed as being on the autistic spectrum.  But let us just say that she needed a home run, and only scored a triple.  She needed one more box to be checked to have a confident diagnosis, and the team of doctors didn’t feel they could do that.  So, that leaves us with a little person who has some issues, they just don’t fall into neat categories.  They felt that the ABA therapy that autistic children often receive would not address her particular needs.

Apparently they felt that she has some sensory processing problems (sensation-seeking) that are leading to some of the behavioral things, so she will be getting some occupational therapy for those.

She will continue to receive the maximum speech therapy allowed under our insurance plan, and also that is the maximum recommended for her age group.  She fell into the 7th percentile for expressive speech, which I don’t have to tell you is not all that hot.

I think as a parent, I wanted everything to fall perfectly into those boxes, so that I could point to something definitively and say, “Aha! That is the cause!” and then do everything I can to learn about that something and advocate for her regarding that something.

But that something isn’t anything at the moment, although she will be re-evaluated in six months because as I said, there are things that are not quite right, they just don’t fit into the autistic spectrum at this time.   So I’m left sort of wondering why her speech is so delayed and why she has some of the problems that she does without any medically recognized condition behind them.

Which for me, personally, is difficult.

Any advice?

 









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